“Are you ok?”

How many times have I heard the words “Are you ok?”? I’m so sick hearing that question; I guess that is the way how they ask it that gets on my nerves. Plus, my aide asks me if I’m ok a lot, even if she is not talking to me. I suppose the best way to describe the way how the question is a way how you would talk to a baby. I mean if I move my body around in my wheelchair, my aide asks me if I’m ok. Come on people, can I do whatever I need in peace? I think the weirdest time to ask a person, “are you ok” is when he/she is choking; obliviously, he/she is not. However, I know that is the only thing to ask a choking person.

 

I can’t write about this topic without telling you about time in my life. I was going to college and my general mathematics instructor was an older short woman. She would kneel down by my wheelchair and asked if I was ok in an old woman’s voice; and loudly and slowly so I could understand like I was deaf. My husband and I were dating that time and he used to tease me all the time and asking me if I was ok the way that my teacher did. We used to get a kick out of it.

Last night, I watched “Switched at Birth” and I thought to myself that I wish I could tune people out as John told Daphne to tune it out when she was playing basketball. She turned her hearing aide off and I said wow that’s what I need when I get aggravated so I can tune annoying people and situations in my life out.

What does get on your nerves and how do you handle it?

Freelancing

Last week, I was thinking that I might be good at freelancing and write articles. However over the weekend, someone blogged about how hard that work is. I really did thought that there was a way to freelance and write about what I know; but I learned that is not the case at all.  Yes, sometimes I might get lucky and get my dream task; but, there are no guarantees that I would get the prefect task.

With having that said, I believe that I want to try to freelance. Let me tell you a bit what I’m able and willing to do. My dream job would to write about what I know or how I feel; like about Cerebral Palsy and how it affects my relationships or about the Television shows that I watch. That is why I love writing my blog; but I need to make money and writing a private blog is not a way to make an income. Yes I would want my dream writing job; however, I am willing to try to do anything if I know how. That brings me to my knowledge.

 

I use the computer a lot. I have my degree in computers. I created and manage a website for my church with Joomla 1.5. I also do their weekly bulletin and monthly newsletter with Microsoft Word. I can’t think all my skills, so just ask me if you wonder if I know how to do something. Also, I wrote a novel based on my life with Cerebral Palsy which I would love to get published. So if anyone knows, any points on getting a book published please send them my way. A lot people write books, why not me; why I can’t find out how to get the publishing process started? Let me know if you have any work for me. My email address is cp.princess70@gmail.com my facebook page is http://www.facebook.com/profile.php?id=100002533638497 and my twitter page is https://twitter.com/#!/cpprincess70 . I will use paypal for any payments.  I hope to hear from you soon. Take care!

Manic Monday

This is how i feel on this early Monday morning.

I only could image

I wish I could do this song "I only could image" in sign language as beautifully as this talented lady can do it . I can't wait until I can walk and talk. I know you with a disability feel the same way, to be without any pain or whatever you have to live with here on earth.  Comment to this post or email me at cp.princess70@gmail.com. Hope to hear from you soon and take care!

Nice Weather

 It was warm weather last week. I love when it is nice weather; like in the 70’s and 80’s and sunny. However, I feel guilt if I’m not outside when it is warm. I can sense that people are probably thinking that I should be outside instead of watching TV. I feel that I should be working when mom is not on talking to me or I should be resting whenever I can; someone is here with me. Plus, there isn’t anything for me to do outside; just sitting there. When I’m home alone, I don’t feel safe being outside alone. I wish that we lived in a neighborhood when I felt safe; I would if there wasn’t for one neighbor, my next-door neighbor. Oh, that’s life; I guess. When I was a kid, I used to love to play outside with my brothers and cousins; but, that was before I was in my body cast. Don’t get me wrong, I still love to sit in the sun and read a book or whatever; I just think resting is more important when I can. Does anyone feel the way that I do?  Comment to this post or email me at cp.princess70@gmail.com. Hope to hear from you soon and take care!

Work

Today is TGIF for me! Few years ago, my husband told me that he would quit his job and stay home and take care of me as he has a Certified Nursing Aide licenses then. I was thrilled, couldn’t be happier. However, he changed his mind like he does a lot when it comes to me; I feel like he tells me that he will do something to shut me up. I would love to have him home instead of having a darn aide taking care of me. Every morning that he leaves for work, I get upset; more on some days than others. Now since, we have an outrageous mortgage, we can’t afford him quitting and do my dream. It makes me angry. I wish we could have a redo like we used to do when we were kids. I would give everything up to have my husband as my “aide”. I know that he probably changed his mind because he would be bored at home all the time. I really hate him going to work. Does anyone who has CP wish that one of your loved ones would quit their job and stay home with you?  Comment to this post or email me at cp.princess70@gmail.com. Hope to hear from you soon! Have a great weekend and take care!

Sleep

How good sleep is? Oh man, I think I could sleep all the time if I didn’t feel guilty about leaving my loved ones alone. Am I alone in that? Sleeping makes me feel so peaceful. Lately, I just want to sleep; since we moved in our new house, I have felt differently. My sense of time is off; time seems long to me. Even when I’m sleeping, I wake up few times feeling I have sleeping for a long time; it doesn’t mean that I’m ready to get up. I also feel groggy; my head is cloudy. I am going to see a therapist on March 17^th to discuss my issues and I hope I can explain this problem good enough so the therapist can understand and determine what’s wrong with me and can help me. I also can’t wait until I can talk honestly about me and not worrying how my husband feels. Does anyone have any suggestions how to explain it to him? Comment on this post or email me at cp.princess70@gmail.com. Or anyone can email me about any of my posts. Take care and hope to hear from you soon.